The Staying Healthy Group

Pathways facilitates the NW Staying Health group which provides a resource for commissioners to engage with an informed and passionate group of self advocates and family members on any health related topic. The group has worked on a lot of NW based projects such as the Greater Manchester eye health strategy for people with learning disabilities and some consultation on behalf of Macmillan Cancer Care. Recently the group has worked with NHS Improvement to co-produce the new learning disability Standards for NHS Trusts published in June 2018:
It has also worked with NHS Improvement and NHS Benchmarking to co- produce the survey that will be used to gather the experiences of people with learning disabilities  using NHS Trust services. These will be published in the Autumn.
There are 4 standards that Trusts need to meet; doing so identifies them as delivering high quality services for people with learning disabilities, autism or both. These standards are supplemented by improvement measures or actions that  trusts are expected to take to make sure they meet the standards and deliver the outcomes that people with learning disabilities, autism of both and their families expect and deserve. NHS Improvement will look at performance against these standards to target support at those trusts that need to improve.
If you would like further information about the Staying Healthy Group and how you might use it to support service design/redesign or any other topic that requires some engagement with experts by experience please contact

8th February 2019

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